A DISEASE, TODAY,
WITH A HOPE
FOR A CURE

Lafora Disease is a rare and devastating genetic condition that affects the nervous system. The first signs appear only in adolescence, with epileptic seizures and rapid cognitive decline.

Over time, it deprives young people of their independence, making daily life increasingly difficult. From the first seizure, a Lafora patient has a short and debilitating life expectancy. Advanced research is the hope of providing a cure.

With your help, we can support families and fund crucial studies to stop this disease.

THE EFFECTS
OF LAFORA DISEASE

Epileptic and Myoclonic Seizures

Involuntary and sudden muscle movements, which become increasingly frequent and debilitating.

STEP 01

Ataxia

Loss of motor coordination, making it difficult to walk, move, and perform daily actions.

STEP 02

Cognitive Decline

Progressive loss of mental functions such as memory, language, and decision-making ability.

STEP 03

Behavioral Disorders

Changes in behavior, with episodes of aggression, anxiety, and depression.

STEP 04

Progressive Dementia

Severe deterioration of cognitive abilities, leading to complete dependence on others.

STEP 05

Reduced Life Expectancy

The disease progresses rapidly, drastically reducing the quality and duration of life.

STEP 06

LUCA.
A STORY OF RESILIENCE
AND HOPE

Luca and his family have decided to share their story of courage and determination in the fight against Lafora.
Their extraordinary strength and perseverance illuminate a path of hope for hundreds of families affected by this rare disease.
Their story is not only a testament to resilience but also highlights the urgent need for further research and support in the battle against this devastating disease.

With every donation, we move one step closer to a possible cure, offering new hope for life to those affected. Now more than ever, it is essential to unite our forces to make a difference.
Every contribution, big or small, counts.

DISCOVER OUR STORIES

Together to stop Lafora disease:
support, research, and solidarity

The Italian Lafora Association (A.I.LA.) is dedicated to supporting patients and families affected by Lafora disease, a rare form of progressive epilepsy. Its mission is to raise public and institutional awareness of the severe consequences of this disease and to promote scientific research to find a cure

A.I.LA. operates through concrete support initiatives for families, facilitating contact with medical experts and promoting fundraising to finance research. The association's values are solidarity, transparency, and mutual support (A.I.LA. Statute 27/4/2019).